My Choice...

Some of you may think I'm a bad mom...
Some of you may think this is the best thing I've done...

This is completely MY decision!

I'm taking Haley off of her medicines! I am watching what she eats and sticking to the diet because that isn't hurting her liver.

I haven't heard anything from the doctor's about what is going on with Haley since our last appointment and yes... I'm furious! I'd love to know what their plan of action is to figure out what is wrong with Haley. Our next appointment for Remicade is May 26th. Of course... that is the last day of school... that is field day... that is Haley's last day as a kindergartener. I tried to reschedule, but couldn't. The Remicade nurse was booked on Thursday, doesn't work on Fridays, Monday is Memorial Day, and is then on vacation for a week after that. So our appt. is at 7 am and no doctor is in the office at that time. I guess I won't get any answers then either unless they draw extra blood while they are inserting her IV. I'm not letting them stab her any more than needed! I'm DONE with all these excessive tests that give us the same results... NOTHING! I want more than anything for the doctors to tell me what is wrong with Haley but I won't let them poke, scope, scare, etc her when they can't give us definant results. We've been going through this for 5 years now... "why can't you give us some answers?!?!"

Now... I am making Haley get this round of Remicade because I'm hoping for some info about this round of blood work. IF... I don't get answers from that appt. then that will be our last for now. I'm not having medicine injected into her (anymore) if she doesn't have Crohn's Disease! I'm also keeping her on Miralax because I know that keeps her stools soft enough for her to have bowel movements. It is also an OTC drug. No prescription needed! That is it!

For now... I'm happy with this decision. I have prayed that it is the right one for Haley. I hope I have NO regrets and that I don't cause her more pain, but only time with tell.

As of today... she looks great! Most of the swelling is out of her body. Her belly has been looking really good that past week. She has complained 4 times since her last dr. appt that her belly has hurt however that is better than everyday! I've been writing down the date and what she ate everytime her belly does hurt. I was hoping that might give me some answers!

I'll keep you all posted.

I love my KIDDOS!!